報告與數據
ALZHEIMER ASSOCIATION USA
AA provides progress in promising research and treatments for all types of dementia. There are links to clinical studies underway and recruiting participants whether experiencing memory loss or supporting those who are.
Research progress here
BUILDING CAPACITY FOR MEANINGFUL PARTICIPATION BY PEOPLE LIVING WITH DEMENTIA
(UBC-Lakehead Universities, WSH, NWDWG 2020)
“Project aims to enhance and promote opportunities for people living with dementia, including dedicated and inclusive physical and social activities that account for the interests and needs of people living with dementia…fosters connections in community and the growth of initiatives based on community capacity and interest.”
Information here
CANADIAN CHARTER OF RIGHTS FOR PEOPLE LIVING WITH DEMENTIA
(Alzheimer Society of Canada 2019)
“The Charter defines seven explicit rights to empower you to self-advocate as a person living with dementia in Canada…ensures that the people and organizations that support you will know and protect your rights.” Right #4: “To access support so that I can live as independently as possible and be as engaged as possible in my community.”
Information here
THE HUMAN RIGHTS OF PEOPLE LIVING WITH DEMENTIA: FROM RHETORIC TO REALTY
(Dementia Alliance International 2016)
“A basic introduction to Human-Rights Based Approaches (HBRAs) – a UN approved system, which has been applied across all sectors… focuses on ways in which the Convention for the Rights of Persons with Disabilities (CRPD) can be used to promote the well-being and quality of life of people living with dementia.”
Information here
A DEMENTIA STRATEGY FOR CANADA: TOGETHER WE ASPIRE
(Public Health Agency of Canada 2019)
“It is possible to live well and achieve quality of life at all stages of dementia through compassionate diagnosis, connection to support systems, increased awareness of dementia among all Canadians and reduced financial hardship for those living with dementia and their caregivers.”
Information here
DEVELOPING CULTURALLY GROUNDED DEMENTIA EDUCATION MATERIALS FOR INDIGENOUS COMMUNITY-BASED CARE
(Jacklin & Blind 2018)
"ICARE investigators and research staff worked closely with our community advisory members and Tribal Leadership to develop" a suite of tools: Dementia in Indigenous Populations; Underlying Frameworks: Cultural Safety & Two-Eyed Seeing; Indigenous Understandings of Memory Loss & Aging; Fact Sheets; Dementia Care for Indigenous People and their Families.
Information here
ADDRESSING STIGMA: TOWARDS A MORE INCLUSIVE HEALTH SYSTEM
(Chief Public Health Officer of Canada, 2019)
“Stigma is associated with poorer physical and mental health outcomes …and cannot be understood or treated separately from stigma related to other characteristics such as race, gender, sexual orientation, age, and income…We can stop using dehumanizing language, examine our own assumptions, and implement policies and education programs, while also measuring our progress towards stigma elimination.”
Information here
RISK REDUCTION OF COGNITIVE DECLINE AND DEMENTIA
(WHO 2021)
“Guidelines for risk reduction…provide evidence-based recommendations on lifestyle behaviours and interventions to delay or prevent cognitive decline and dementia.”
Information here
WORLD ALZHEIMER REPORT 2019: ATTITUDES TO DEMENTIA
(Alzheimer’s Disease International, ADI)
ADI’s 2019 global survey of attitudes to dementia and recommendations “to take action, to improve awareness, to help dispel lingering myths around dementia and ultimately aim to reduce or even eradicate stigma.”
Information here
VIRTUAL CARE FOR PATIENTS WITH ALZHEIMER DISEASE AND RELATED DEMENTIAS DURING THE COVID-19 ERA AND BEYOND
(Canadian Medical Association Journal, March 15, 2021)
Virtual visits have unique challenges but can potentially improve access to health care for those experiencing dementia. Evidence demonstrates that videoteleconferencing can be useful in assessment, planning, and management of a diagnosis. There is much research underway to overcome barriers and adapt modalities for direct-to-home care.
Information here